- Minicore was only first identified in 1971 and was previously known as "Multicore Myopathy"
- It can crop up in families where there's been nobody previously with a muscle disorder
- 4 forms of Minicore and 2 specific gene mutations have been identified since 2004
- It affects both male and females equally
- Severity & symptoms are extremely variable from person to person
- There are only 2,000 documented cases worldwide
- There is no cure